The Friedreichs Ataxia Society Ireland (FASI) was established in 1980, and its address is:

San Martino, Mart Lane, Foxrock, Dublin, Ireland.
Telephone: 01-2894788
Fax No. 01-2894788

The objects of the Society are:

  1. To provide a forum in which suffers from Friedreich’s and other hereditary ataxias, and relatives can meet, exchange views, make and comment on suggestions, and discuss their difficulties and aspirations.
  2. To provide information on all aspects of the condition.
  3. To provide help and support for sufferers from FA (and their relatives) by advising and helping them in obtaining suitable accommodation, and other necessary amenities. Advice is given also in relation to financial and other benefits to which they are entitled
  4. To keep in touch with similar groups throughout the world, and with other support organisations in Ireland.
  5. To act as a pressure group on behalf of FA sufferers and their families.
  6. To fund research into FA, and investigations of methods of treatment and management of the condition, and to monitor and assess the research being undertaken in other countries.

Membership of the Society is available to any interested person and there are no entrance fees.

A good deal of emphasis is put on the help the Society can provide to relatives of sufferers from Fa, particularly when the disorder is first diagnosed. It helps to remedy their uncertainty and sense of loneliness at that difficult time, and can provide genetic information as well as support and general informtion, enabling them to adjust to their new situation.