Moylan Family Guest Book 2001 Guest Book Entries 2001
susan coe on Sunday, December 30, 2001 at 18:37:20
WS: Yes - Relation: Sibling
Found: Link from a WS site - Which:
www.williams-syndrome.org.uk
Comments: just looking for more info. on WS! very interesting!
Sara Moran Mauviel on Friday, December 28, 2001 at 20:35:14
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: www.yahoo.com
Comments: I am so happy to know that the babies whit S.W have a great and happy future.My baby,Dana,is ten mounths and we are learning all about the Syndrome.We are from Argentine.
Evelyn S. Ramirez on Friday, December 28, 2001 at 01:22:23
WS: No
Found: Link from another site
CAROLYN SMITH on Sunday, December 16, 2001 at 12:26:20
WS: Yes - Relation: Sibling
Found: Search for WS sites - Which: search 66
Comments: Our son Jamie who is now 32 was diagnosed with ws when he was 5. It was only when he was 19 and we saw a related program on TV that we recognised the symptoms and made enquiries that we learned of this. Jamie has a twin sister who does not have any problems. Jamie lives at home with us and works part time at a truck depot. 4 years ago he had major heart surgery and then another 12months later. So far he is keeping well. Jamie is the patient mentioned in an article written by Drs Hossack/Neilson regarding ws in twins. We are now aware of several children in our with ws. When we first read about ws every symptom we read about we could relate to for eg. crying 21 out of 24 hours in a day. However he has grown into a nice young man and knows everyone (although can never remember their names) You know mum the lady who has that little black dog! or the fellow we saw 15 years ago when we were at the beach! As I read in someone's email it was good to be able to put a label on the problem.
A Haskell on Thursday, December 13, 2001 at 03:14:37
WS: No
Found: Other
murphy on Tuesday, December 11, 2001 at 21:41:05
WS: No
Kelly Moylan on Tuesday, December 11, 2001 at 01:52:07
WS: No
Found: Search for a name
Comments: Its great to see how many Moylans are around! I live in Geelong,Australia. My fathers name is David John Andrew Moylan and my mothers name is Heather. I am 22 years old.
Thanks for a great web site. Regards Kelly from Geelong in Australia
sophia hassilidis on Thursday, December 6, 2001 at 10:47:39
WS: Yes - Relation: Psychologist
Found: Link from a WS site - Which: williamssyndrome.org
Comments: as a psychologist i work with a 6 years old girl. Her behaviour, will, way of relating has impressed me. I am searching for anything that could help her, her family and her school environment... in order to accept differences. Hopefully! There is a way!
NAOMI STOKES on Thursday, December 6, 2001 at 05:07:20
WS: No - Relation: Parent
Found: Link from a WS site
Shirley Robles on Tuesday, November 27, 2001 at 19:57:33
WS: Yes - Relation: Grandparent
Found: Search for WS sites - Which: pbs.org
Comments: I would like to be a good support for my grandaughter so I would appreciate more information. She is now 11 years old.
afsoon westwood on Saturday, November 24, 2001 at 15:07:56
WS: Yes - Relation: Other
Found: Link from a WS site - Which: ws association
Comments: i'm a 21 year old special needs worker in canada and the woman i work with has william's syndrome so i'm learning more about it. meeting her has really opened my eyes to the diversity of humanity. i know i don't understand what it's like to have a person with ws in my family or as my child, but i send my love to all who do because you are very special. i hope that in some way, i can help the young woman i am working with. wish me luck, and all the best to you. and thank you for this great web site. :)
Wendy McLaughlin on Friday, November 23, 2001 at 22:54:52
WS: No
Found: Link from a WS site
Filip D'Hulster on Thursday, November 22, 2001 at 14:16:17
WS: No
Found: Other - Which: google
Comments: Very nice site ! please visit our family site at www.dhulster.net
Cindy McDowell on Tuesday, November 20, 2001 at 21:45:09
WS: Yes - Relation: Grandparent
Found: Search for WS sites
Laura Olson on Monday, November 19, 2001 at 19:36:58
WS: Yes - Relation: Other relative
Found: Search for WS sites - Which: AOL
Pétursdóttir Herdís on Sunday, November 18, 2001 at 23:26:23
WS: Yes - Relation: Parent
Found: Yahoo! WS club
April on Monday, November 12, 2001 at 19:26:25
WS: Yes - Relation: Other
Found: Search for a name - Which: aol - williams syndrome
Comments: I have a reseach paper to do and would like to find out more about it and personal experiences.
Thomas Rowe on Monday, November 12, 2001 at 04:38:43
WS: No
Found: Search for a name
Michelle Provvedi on Monday, November 12, 2001 at 04:02:08
WS: No
Found: Link from another site - Which: yahoo
bob on Sunday, November 11, 2001 at 06:43:31
WS: No - Relation: Other relative
Found: Search for a name - Which: yahoo
Julie Henderson on Sunday, November 11, 2001 at 05:02:48
WS: Yes - Relation: Teacher
Found: Search for WS sites - Which: Yahoo
Comments: I'm a Special Education teacher in Melbourne Australia and we are researching different syndrome's that are students have to present to the rest of our staff. I am in the group researching William's symdrome and have found your site extremely helpful. Keep up the great work.
Glenda Wilson on Saturday, November 10, 2001 at 23:58:29
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: aol
Comments: I have a 29 year old daughter with Williams Syndrome. Diagnosed at 10 mos. old. I am interested in chatting with anyone who has Williams Syndrome or parents of children with Williams Syndrome.
kristen myers on Wednesday, November 7, 2001 at 00:04:25
WS: No
Found: Search for WS sites - Which: i searched on AOL
Comments: i'm currently doing a report on Williams Syndrome and i need as much info. possible. i was hoping to also find a site from a person(s) who actually experienced the effects of the Williams Syndrome so that i might get a better look at it from a person's point of view and not a textbook's or stats. i hope that this will be of help.
carmen coetzee on Tuesday, November 6, 2001 at 11:07:20
WS: Yes - Relation: Friend
Found: Told about it - Which: yahoo
Comments: A friends child has just been diagnosed with the syndrome and i wanted to know more.I found this extremely intresting if not fasinating.
Lucille Kasputis on Monday, November 5, 2001 at 13:41:20
WS: Yes - Relation: Other relative
Found: Told about it
Comments: My 32 Y.O. Daughter I recently found out she was born with Williams Syndrome. I was never told her diagnosis till a few months ago. I would like to be put on a list to speak with other parents.
paul culbert on Saturday, November 3, 2001 at 03:26:35
WS: No
Found: Search for a name - Which: msn
Comments: just searching for my mothers maiden name mrs mary bridget culbert,here maiden name being moylan ,coming from ireland ,portloasie just wandering if you reconise the name and the place,you might reconise her mothers name being hannah moylan who lived to a good age of over 90 she also lived in portloasie,any how it was nice visiting your site
yours paul culbert
phyllis on Friday, November 2, 2001 at 04:39:54
WS: No
Found: Link from another site
sam walker on Wednesday, October 31, 2001 at 17:12:46
WS: No
Found: Link from a WS site
Comments: I am studying for an MSc in psychology & would like to research Williams Syndrome, although I know little about it.I found your site while surfing the net. It has been very informative, thank you and love to you all.
Samantha Jackson on Sunday, October 28, 2001 at 23:24:49
WS: Yes - Relation: Parent
Found: Link from a WS site
Comments: My daughter Rebecca is 9 and has W.S. She was diagnosed at 18 months.
Kieran & Claire Williams on Sunday, October 28, 2001 at 11:11:45
WS: No
Found: Search for a name
Comments: We have enjoyed very much reading all of your various pages. It maybe that you have a number of guestsbooks or we have signed one twice. We are pleased we came across your sites. You might like to check out two sites I have created,
http://www.ozemail.com.au/~yonkers/index.html
http://www.acenet.com.au/~roz/index.html
Kieran Williams
Kieran Williams on Sunday, October 28, 2001 at 10:48:20
WS: No
Found: Search for a name - Which: I think it was Anzwers Search Engine
Comments: Congratulations. A very informative site. I just happened to come by while seeking family information. I was not aware of this syndrome previously.
God Bless you all.
Kieran & Claire Williams in Australia
PAUL MOYLAN on Thursday, October 25, 2001 at 22:35:59
WS: No
Found: Search for a name - Which: aol search
Comments: just looking for the family name sites.had never heard off WS.very interesting site. GOOD LUCK
Tia Airhart on Thursday, October 25, 2001 at 04:38:59
WS: No
Found: Other - Which: Google
Comments: I am searching for more information on Deletion Syndromes especially 18p. If you have any information or know of where to find any please e-mail me as soon as possible. You have a beautiful site and I'm very touched that you would think enough about other families to get all this information out to the world. I am very greatful.
Mae Leslie on Tuesday, October 23, 2001 at 18:27:46
WS: No
Found: Told about it
ciaran flynn on Sunday, October 21, 2001 at 21:24:55
WS: No
Found: Told about it - Which: my mum
Comments: very well detailed website
martin humberto poveda morales on Friday, October 19, 2001 at 23:31:40
WS: No - Relation: Doctor/Medical Professional
Found: Link from a WS site
Comments: gracias por pertenecer a la familia.
Kim on Thursday, October 18, 2001 at 20:42:45
WS: No
Found: Told about it
Comments: My sister told me about this site, she noticed that my son has most of the common features of Williams Syndrome. Gideon has had problems since day one,to date no one can give me a reason why Gideon has the problems he has. he is a very loving child Is always ready to give big hugs. He is now amost 8 years old. I found your site interesting and helpful. now I have something to take to the neurologist with us. Maby now we can have an answer.
Kelsey Anderson on Wednesday, October 17, 2001 at 22:14:30
WS: Yes - Relation: Parent
Found: From the WS listserv - Which: america online
Comments: We meet with our family doctor and a pediatrician in a few days to find out whether or not our 8 month old daughter has Williams Syndrome. Right now, my heart is breaking, but reading the messages on this website are encouraging. The website is very user-friendly; thanks for all the helpful information
Kathy Consadine on Thursday, October 11, 2001 at 16:45:15
WS: Yes - Relation: Other relative
Which: MSN
Comments: Sorry I haven't looked through your site yet - just wanted to sign in. My nephew has a daughter with Williams syndrome - but he had to go to Australia for them to diagnose her. For 21 months in Aberdeen they said it was thyroid - 2 months in Australia and now they know what is wrong with her and she is getting treatment.
michelle mc hugh on Tuesday, October 9, 2001 at 22:36:40
WS: Yes - Relation: Teacher
Found: Yahoo! WS club
Sandra on Friday, October 5, 2001 at 21:59:07
WS: Yes - Relation: Grandparent
Found: Search for WS sites
Allison Ball on Thursday, October 4, 2001 at 11:42:21
WS: No
Found: Search for a name - Which: Yahoo
Comments: I am very interested in genetic disorders and I came across your web page while I was researching information for a thesis. This web site is very informative and well planned.
Gary & Elaine Elson on Sunday, September 30, 2001 at 05:59:18
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: Amanda Placheki site
Comments: Our daughter Jessica is 8 and was diagnosed with WS when she was 1. It's great to read about other WS children and their families.
Nanci Kelly on Monday, September 24, 2001 at 18:15:01
WS: No
Found: Other - Which: Individual & Family Web Pages
Comments: I am a student at Temple University, Ambler PA doing research for a Special Education course. This website was very informative. Never heard of Williams Syndrome. Best Wishes Always.
Emma on Monday, September 24, 2001 at 10:42:33
WS: No
Wendy Gray on Monday, September 24, 2001 at 04:29:37
WS: No
Found: Other
Comments: Hello, I just want to thank you for the information you have provided on you site about William Syndrome. I am a Special Education Teacher and I'm trying to get more information and some insight about this particular syndome
debra Otis on Sunday, September 23, 2001 at 04:54:39
WS: No
Comments: Tracing Stokes geneology from newry/whitecross
Carol on Saturday, September 22, 2001 at 17:34:19
WS: Yes - Relation: Other relative
Which: Lycos
jonjo moylan on Tuesday, September 18, 2001 at 19:00:23
WS: No
Which: aol
Comments: I was wondering how many Moylans are their in Ireland, there are only a few in England
Cathy on Tuesday, September 18, 2001 at 05:39:45
WS: Yes - Relation: Other relative
Found: Link from a WS site
julie brown on Monday, September 17, 2001 at 22:40:39
WS: No
Jeanette Watt on Saturday, September 15, 2001 at 10:45:39
WS: Yes - Relation: Parent
Found: Link from a WS site
Comments: My 7 year old son Matthew has WS. He was diagnosed at aged three after we changed specialists. he is a fun loving child who loves hugging people. He has a lovely smile and lights up the room when he walks in. He also loves music and has good rythum. He still only sleeps through the night about one or twice a week, which I find very tiring. My other son, 12 years old, loves him but gets very frustrated with him at times. Matthew now has a teacher aide at school but is still making slow progress, and we've been told it will be a long hard road with him.
Denilson Trespach on Saturday, September 8, 2001 at 23:04:02
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: yahoo
Comments: Please... I created a web site about SW, I'm a father of a child with this syndrome. Is possible that my web site have a link in your site??? If possible.. thanks so much. www.sindromedewilliams-brasil.cjb.net
Cecily Whitworth on Thursday, September 6, 2001 at 21:11:48
WS: No
Pryscil on Thursday, September 6, 2001 at 16:59:38
WS: Yes - Relation: Sibling
Comments: Thanks for charing your story.My sister is now 20 years old,she was diagnosed when she was 5.She took and still takes such a big part in the family that my parents forgot that me and my brother needed attention,affection and love also.Needless to say we suffered and still do a lot from that.Don't get me wrong I love my sister intensly and I would not replace her for the world. Just a thought that I wanted to send to the parents with a William Syndrome and other siblings growing up at the moment.I wish you all a lot of courage!
Kristin Eggleston on Wednesday, September 5, 2001 at 14:17:41
WS: Yes - Relation: Other relative
Found: Search for WS sites - Which: Google
Comments: Conrad, my nephew, is 4 now and his last Halloween costume fit him to a "T": he dressed up as a "Little devil"! One of his latest escapades was sneaking over to the neighbor's house and climbing in the driver's seat. When they found him, he was fiddling with the keys which were in the ignition. Even though we live in a small, safe town, the neighbors make sure to lock EVERYTHING up tight!
Roxanne Boudreau on Saturday, September 1, 2001 at 22:19:06
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: AOL
Comments: My daughter is being tested
tracy on Tuesday, August 28, 2001 at 01:07:53
WS: Yes - Relation: Parent
Found: Search for a name
Comments: my daughter is 7 and we were just told that she may have this we go on october 4 to see the doctor.
Joan Purtell on Tuesday, August 21, 2001 at 17:59:03
WS: No
Karen & Kevin Matthews on Sunday, August 19, 2001 at 02:41:24
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: yahoo
susan duclos on Thursday, August 16, 2001 at 00:44:30
WS: No
Found: Search for WS sites - Which: yahoo
Gary N. Proctor on Saturday, August 11, 2001 at 23:45:36
WS: No
Found: Search for WS sites - Which: Google
Comments: I am a post-grad in Special Education at Portland (Oregon)State University taking coursework to recertify to teach in Guam and was assigned WS randomly to research on the internet as part of a class I'm taking. Having been involved in SPED for a number of years, I was greatly surprised to find a condition I'd never heard of. I know precious little about a number of syndroms and maladies, but to encounter one I'd never even heard of... I have found your site to be one of the most helpful, not only from a research perspectve but also as an adjunct to my own education. If I ever get the chance to visit the 'old sod' to seek out my ultimate family roots, I should like to look you up and thank you personally. Until then, thank you for all the work you've put into this site.
Most sincerely, Gary Proctor
Douglas Cox on Friday, August 10, 2001 at 03:26:06
WS: Yes - Relation: Parent
Found: Search for a name - Which: AOL
Comments: My 6 year old son; ironically named William; has Williams Syndrome. It was first brought to our attention in his first year by his pediatric cardiologist; a fellow named Dr Israel. I confess I scoffed at this notion; and have not opted for any genetic testing. Our pediatrician did not push us for such and to some extent we did not desire an answer as we knew there was no treatment. Nor have I sought any info until last week when a gentlemen approached me and asked if my Will had Williams Syndrome; I was floored. His son has been diagnosed with it. My reading this evening has brought not only tears but a new awareness. I thank you for this opportunity to share.
Jodi Donohue on Tuesday, August 7, 2001 at 23:56:27
WS: Yes - Relation: Sibling
Found: Link from another site - Which: yahoo
Comments: I have a 36 year old brother with 'classic Williams Syndrome' traits. I'm looking to find research into William's Syndrome and aging.
Una Dennedy on Tuesday, August 7, 2001 at 16:59:53
WS: Yes - Relation: Parent
Found: Other - Which: yahoo
Comments: My son Kevin is 29. I first heard of WS last week & was astounded to see him described on the website - it was such a shock I burst into tears. I always thought his little 'oddities' were unique. Teachers, doctors, speech therapists, educational psychologists etc always insisted he was just a slow developer. I spent years dragging him from one specialist to another, but nobody ever gave me an answer. My doctor has not yet agreed that Kevin has WS, but my family are convinced that he has a very mild version. It all matches. At last an answer to a 29 year old question - but does it help me/him to be able to put a label on his condition? He still lives at home, but has a fulltime job helping with autistic children. I always had a guilty feeling that maybe I did some damage during the pregnancy - its such a relief to find that is not true, although that knowledge will not help Kevin. He was a pretty placid but very clingy baby and this continued right into his teenage years. He also had a severe soiling problem, until the age of about 12 or 13. Sometimes when I try to explain something to him or convince him of something I end up feeling like Alice in Wonderland - its as if our brains are on two different wavelengths. But he is very lovable and has plenty of friends (and runs my phone bill through the roof). On balance, I think I am glad to have an answer to the puzzle at long last, even if it was a shock.
Patricia Messinger on Wednesday, August 1, 2001 at 22:39:00
WS: No
Found: Link from a WS site - Which: ask jeeves
Comments: I`m currently looking after an 8 year old little girl from Belarus. She is here for respite care with the Chernobyl Childrens Project. At the Cork University Hospital today it was suggested that Marsha may have Williams Syndrome hence the reason I found your site ! I`ll let you know how the tests go and will then be looking for all the advice I can get. By the way just loved the Holland story !
Deb Lloyd on Friday, July 27, 2001 at 03:46:38
WS: Yes - Relation: Other
Found: Link from a WS site - Which: yahoo
SONIA CUEVAS on Wednesday, July 25, 2001 at 02:30:31
WS: Yes - Relation: Parent
Found: Search for WS sites
Comments: my sons name is william. he has been diagnosed as mentally delayed. after coming across this syndrome it was like he has so many symptoms of william syndrome. i would love it if i could get any information onthis thank you sonia
Martina Reitz on Tuesday, July 24, 2001 at 06:59:56
WS: No
Found: Search for Offaly sites - Which: Excite
Comments: I grew up in Offaly. My family owned Moneyguyneen House for nearly 20 years. I moved to Australia in 1982 but even so Offaly is still in my heart! Nice to be able to "keep an eye" on it even from way over here in Australia. Keep up the good work!!!!Thanks, mate!
janet pelfresne on Thursday, July 19, 2001 at 19:00:26
WS: Yes - Relation: Other relative
Comments: Our 2 year old son that was just diagnosed with Williams Syndrome,we have dealt with many different health problems since his birth -some very difficult,his heart surgery at 13 days old and some not quite so trying ...but we have a bueatiful happy little boy. now that we have a diagnosis we can become prepared for more of what to expect.thank you for having a site that I can learn from.I wil now go on to read your "story". janet
Christy Rightnour on Tuesday, July 17, 2001 at 03:27:55
WS: Yes - Relation: Parent
Found: Search for WS sites
Comments: My son is 8 and a half months old we found out he had WS when he was 4 months old, He is our first child. At 4 months old they found a heart murmur, he has pulmonary valve or pulmonary branch artery stenosis as well as supravalvar aortic stenosis and hypoplastic aortic arch. He had a heart catheterization done when he was 4 and a half months old. We were relived to find out that they did not have to baloon any of his ateries. He was seeing a cardiologist every month, now we only go every four months so things are looking better. We have always had trouble getting him to eat he is not under weight or hieght, but it has taken alot of work and patience getting him to eat a so called normal amount. He has a milk and soy protien allergy they found that at 10 days old. He also has reflux but it has gotten alot better. He was also was diagnosed with Benign Paroxysmal Torticollis, he has episodes in which his head tilts one way or the other. They say it has nothing to do with WS. We have a PT coming to the house weekly to work with him, he is not yet crawling but he sits up for a short amount of time, he has alot of tightening in his hips which is related to WS. He loves to stand and hold on to somthing while he plays. So far he has not had any problems with useing his hands to grab at things and play. He has his fussy times, but when he smiles you seem to forget about all the hard times, He can brighten a room with his smile. I want to thank you for all the information its nice to know we are not alone. Sincerly Christy Rightnour
Christy Rightnour on Tuesday, July 17, 2001 at 02:08:36
WS: Yes - Relation: Other relative
Found: Search for WS sites
Tara Andujar on Sunday, July 15, 2001 at 23:25:17
WS: Yes - Relation: Parent
Found: Search for WS sites
Comments: I have a 21 mth old daughter with WS she was diagnosed 1 day after her first birthday. My pregnancy with her was very hard I was in going into labor from five mths of pregnancy on until the end. She was born at 5lbs 14oz. She was very little. She had suffered fetal starvation and the cord was wrapped twice around her neck. She wouldn't eat at all, she lost over a pound her first day of life and she ended up in the nicu for a week. At her two mth check up we went to the Dr. and found out that she had a heart murmur. After that she was having blue episodes and passing out. We got into a Cardiologist and 1 week later she had open heart surgery. She has Pulmonary and Aortic Stenosis. She has 3-4 more open heart surgeries to go they are just waiting for her to get bigger. She is almost two now and the only real problem is getting her to walk. She loves music and she loves to talk and be center of attention (she is quite a ham). She has a 5 mth old sister that she adores and loves to entertain. Ariana is 21 mths of age and is 17 lbs, her baby sister is only 4 lbs less, and they wear alot of the same clothes. Its cute!! We live in AZ and have only met one other child like her. We would love to talk and share stories with others so please feel free to write. Thank you for having a wonderful web site like this, I love reading others experiences with WS.
Chineme Nwoke on Friday, July 13, 2001 at 21:30:13
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: UK WS Foundation
Comments: My daughter is 2 and a half and I have in the last couple of days put a name to her condition. Like many other parents, from the time of her birth I have pushed and pushed for tests on every aspect of what appeared to the medical professionals to be seemingly unrelated ailments. At last we found a doctor who took the time to put everything together. I read his notes and saw he had written down WS. He has not yet told me this but I did my own research on the web. The relief to finally put a name to the 'symptoms' was immense, as was the feeling of total helplessness and devastation. I'm crying alot. Really out of frustration. I'd like to thank your family so much for taking the time to share. Also all your guests. I don't feel so isolated now. As with others, my beautiful daughter is a bundle of joy and laughter with whom noone can help but fall totally in love. Much love and happiness.
SMITA MISHRA on Sunday, July 8, 2001 at 13:26:58
WS: No
Found: Search for WS sites - Which: yahoo
Comments: I wish I could do something for these special children of god.
Graham Buchanan on Saturday, June 30, 2001 at 22:28:32
WS: No - Relation: Parent
Found: Search for WS sites
Comments: My wife and myself have recenly been told that our 8 week old daughter has WS, she also has Shachman Diamond Syndrome-a panreas and bone disorder. My daughter Amy and wife are still in hospital, and will be there for another month or so yet. Graham Buchanan.
Susan McIntosh on Tuesday, June 26, 2001 at 18:44:49
WS: No
Ms Clavelina Carmen De Lawder on Tuesday, June 26, 2001 at 18:44:11
WS: No
Found: Yahoo! WS club - Which: Yahoo
Anette Pihl on Monday, June 25, 2001 at 11:14:28
WS: No
Marilyn Reid on Saturday, June 23, 2001 at 14:57:12
WS: Yes - Relation: Friend
Found: Search for WS sites - Which: Yahoo
My neighbors' daughter was 13 when diagnosed, ending years of frustration for them, having been told a) there was nothing wrong, they were just fussy parents b) she was a slow developer c) she was an early developer! (by the same doctor, when she started to go through puberty at 6 years of age). She is now 25, with a lovely outgoing nature.
Andrea Moylan on Thursday, June 21, 2001 at 05:27:47
WS: No
Found: Search for a name - Which: yahoo
Lindsey Ogg on Tuesday, June 19, 2001 at 22:19:19
WS: Yes - Relation: Doctor/Medical Professional
Found: Link from another site - Which: Not sure
Comments: I was really pleased to hear that their was a website as I am a nurse and currently looking after a child who has just been diagnosed with Williams Syndrome and was really not sure about it and what it was. Thanks for helping me out.
karen hayes on Saturday, June 9, 2001 at 05:52:35
WS: Yes - Relation: Teacher
Which: google
elizabeth perella on Friday, June 8, 2001 at 19:32:59
WS: Yes - Relation: Parent
Found: Search for WS sites
Comments: Interested in all information on williams syndrome - recently my fourth child(Regan O'Neil Perella-8mos old) was diagnosed. He is a very alert happy child with low muscle tone although he recently sat on his own for 2 minutes. We were very proud and excited. We are having some difficulty feeding solids and are trying to keep him on the chart for weight. He is presently 15.6lbs. and has decreased intake of formula. We are looking for any and all insight and appreciate all the information possible.
Johnson on Tuesday, June 5, 2001 at 12:48:36
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: Williams Syndrome
Karin Nolan on Monday, June 4, 2001 at 14:25:20
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: Yahoo
Comments: My daughter, Natasja, died two and a half weeks ago on 17 May. She was 19 years old. She was diagnosed with Williams Syndrome at the age of 3 when I was expecting my son, Dayne, now 16. I also have a daughter, Megan, 13 years old. They are both healthy, normal children. We all miss Tash terribly, she was so special, our angel. Although we knew that she was on loan to us, we were not ready to say goodbye. She died from multiple organ failure, within 22 hours of being admitted. Her heart stopped 9 times, she went into a coma and never came out of it. She never had it easy, she was mentally retarded, could not attend school, we tried. She had a very complex heart problem, was never strong enough for surgery. She had several eye operations, was very squint. Three years ago she was very sick, we did not think she would pull through, she had absesses on the brain, which they drained three times. She was in hospital for three months, suffered terribly, but recovered remarkably. It was the return of these absesses that caused her quick death. She was saved the terribly suffering. Something I noticed over the last few months was that it seemed as if she was ageing very quickly, she shrunk, her skin looked old, her hearing was bad, she ate very little, she was always tired. She loved music, had an excellent memory, knew all music and artists. The other love was her bucket of beads, all colours, shapes and sizes. She played with it for hours on end. She loved her family, had many friends, everybody loved her because of her lovely nature. She asked for nothing in life but love, food, friends, music and a Cadbury's Flake. I live in Centurion, Pretoria, South Africa. Enjoy your daughter, love her, our WS kids are great. Take care.
NAOMI STOKES on Monday, June 4, 2001 at 07:30:39
WS: Yes - Relation: Parent
Found: Link from a WS site
Comments: MY SON ADAM HAVE WILLIAM SYNDROM, AND I WOULD LIKE OTHER KID HIS AGE WITH WILLIAM S; TO WRITE TO HIM THANK YOU
Arnica Lykkegaard on Friday, June 1, 2001 at 23:03:51
WS: No - Relation: Teacher
Found: Search for WS sites - Which: google
Comments: I live in Greenland, and I am daycare teacher in a lokal kindergarden (don't know if that's the right word) where I care for a 5 year old WS boy. I'm looking for pedagogical and educational help to give him the best possibilities.
Mary Mason on Thursday, May 31, 2001 at 01:41:48
WS: Yes - Relation: Sibling
Found: Search for WS sites - Which: google
Comments: I have a sister, Jenny, with WS. She is playing her piano by ear as I write this. She is 42 yrs. old, in good health and truly a blessing. My mother was told all those years ago that Jenny's problems were from her umbilical cord being wrapped around her throat while in the uterus. It's only been about 6 yrs. or so since we've found out the truth, and you all can imagine the relief my mother experienced knowing that she could not have prevented this. I am searching for local (southwest USA) camps or get togethers for Jenny.
Dawn Archer on Saturday, May 19, 2001 at 23:41:59
WS: Yes - Relation: Parent
Found: Search for WS sites
Comments: I am new to this internet stuff, so was searching something I could remember. Our son Benjamin had Williams. He died in Feb. at the age of four years. He had severe heart defects and a stroke (brain bleed) after his heart surgery. He died from pnemonia. Life was never easy for him. We loved him very much. He has a sister who is almost seven and a brother who is almost two. We live in Starbuck,MN USA Ben was diagnosed at the Mayo Clinic in Rochester, MN at the age of three months. Your daughter is beautiful. They might smile late, but they all smile great! Take care of yourselves. I enjoyed your site.
Peter Moylan on Saturday, May 19, 2001 at 15:01:56
WS: No
Found: Link from another site - Which: Ken Moylan's Moylan website
Comments: Is this the same Tom Moylan I met at a telecommunications conference in Turin? If so, I'd be interested in getting in touch again. Well, even if not, for that matter. The sudden urge from all sorts of Moylans to trace their roots has started to catch my interest too.
cynthia schiavone on Friday, May 18, 2001 at 22:15:12
WS: Yes - Relation: Self
Found: Search for a name
Comments: hi my name is cynnthia schiavone from long island i was diagnoted when i was 3 years old now i a m 23 years old now living a normal lifei can,t die from williams syndrom because in my case its not to seriouse.there is one thing i am very sad about other children and adults like me can die from williams syndrom.i have to get a ekj every 5 years i hate it because they prest to hard on my brest bone.i want to send all my love in the world to parents and loved ones with williams syndromi sending all your support.
Diana Sullivan Wiefels on Friday, May 18, 2001 at 00:56:15
WS: Yes - Relation: Friend
Found: Search for WS sites - Which: dogpile.com
Comments: A friend of my daughter's just found out her baby has Williams Syndrome. I was finding out so info for her. You have a very nice Website. Thank you
Maureen McCarthy on Thursday, May 17, 2001 at 20:49:18
WS: No
Found: Link from another site - Which: Moylan Geneology
Comments: Hello. My mother was a Moylan from Newton Tubber,Galway. I live in San Jose California and have recently viewed our family's geneology on the Moylan website.
Dana Davis on Wednesday, May 16, 2001 at 05:38:55
WS: Yes - Relation: Parent
Found: Link from a WS site
Comments: my daughter is 4yrs old and my husband and i just found out that she has ws. we are trusting God and believing that she will be just fine. my daughter's doctor told me there was a web site.
DIANA R. ISAAC on Tuesday, May 15, 2001 at 18:29:44
WS: Yes - Relation: Grandparent
Found: Search for WS sites - Which: MOYLAN FAMILY
Comments: I LIKE YOUR SITE AND THE INFORMATION YOU PROVIDE FOR PEOPLE LIKE MYSELF THAT'S LOOKING FOR ANSWERS AND ANY INFORMATION THAT WILL HELP US TO UNDERSTAND WHAT WE NEED TO DO TO HELP MY GRANDDAUGTHER TO DEVELOPE AND GROW-UP TO SELF-SUFFICIENT... SHE'S A BEAUTIFUL AND LOVING 4 YEAR OLD...A BLESSING FROM GOD... PLEASE KEEP UP THE GREAT WORK AND MAY GOD BLESS YOU AND YOUR FAMILY... THANKS DIANA
Clare McGrath on Tuesday, May 15, 2001 at 16:02:37
WS: No
Found: Link from another site - Which: williams.syndrome.org.uk
Comments: I was doing research. I work for the British Council of Disabled People.
Dianne Morris on Friday, May 4, 2001 at 10:52:38
WS: Yes - Relation: Other
Found: Link from a WS site
Comments: Hi there, I am currently doing a certificate in Learning and Behaviour at Teachers College in Christchurch, New Zealand. One of my assignments is to select a person with special needs and tell all about them. I am studying a wee girl with Williams Syndrome. Hence the lead to here. Hope you are all well, I admire the strength you have.
Lori Moylan-Murphy on Thursday, May 3, 2001 at 03:20:04
WS: No
Found: Link from another site - Which: Moylan family site
Rebekah Sinats on Tuesday, May 1, 2001 at 02:32:00
WS: Yes - Relation: Friend
Found: Search for WS sites - Which: Sherlock
Comments: Wonderful site...I wonder if you or any of your visitors have experienced remorse from thier loved one with WS...in regards to exposing WS persons with other WS persons?
Denilson Trespach on Tuesday, May 1, 2001 at 00:43:15
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: www.uol.com.br
Comments: This is a very good site. Keep going! Please mail me at soon as you can.

Moylan Family Website