Moylan Family Guest Book 2003 Guest Book Entries 2003
james foster on Wednesday, December 31, 2003 at 08:21:44
WS: Yes - Relation: Parent
Found: Search for WS sites
helen moylan on Saturday, December 27, 2003 at 17:44:09
WS: No
Ken Moylan on Wednesday, December 24, 2003 at 04:24:15
WS: No
Found: Search for a name - Which: google
Comments: Is Moylan a somewhat popular name in Ireland? My father is Irish, English and my mother is German. (Klyce) Some red hair but mostly blonde.
Merry Christmas,
Ken
April on Monday, December 22, 2003 at 15:31:42
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: yahoo search
Comments: It's always nice to see someone out there is going through the same thing i am now going through. My son Nathan is 2 years old and has WS.
amir on Tuesday, December 16, 2003 at 08:51:36
WS: No
Found: Search for a name - Which: google
Comments: wow!! great site ... new knowlegde for me
Gimmy on Saturday, December 13, 2003 at 20:06:52
WS: No
Found: Link from a WS site
Comments: Wonderful site! I'm a children psychology student and I work as a volunteer asssiatnt in a special prymary school,with most autistic children,and I love it! Patricia is amazing for what she's doing,and I'm also happy about her music studies cos I'm a musician too(violinist)and I think music is really important in life.Congratulations and good luck for everything. Gimmy
Phillip Moylan on Thursday, December 11, 2003 at 17:39:40
WS: No
Found: Search for a name
Comments: Just searched on internet. Living in Kent but Grandparents came from nr Gowran Park in Kilkenny Eire
lisa eckersley on Tuesday, December 09, 2003 at 00:00:13
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: google
Comments: just self-diagnosed our 10 year old Annie with WS, and am looking into other sources for help/support. Enjoyed your summary of Patricia, and found it matched our story in many respects. Your photo of her curly hair (my Annie's is blond) and at the keyboard as a toddler could be found in our photo albums, too! I gave up with neurologists and geneticists at about her 3rd b-day (too scary and painful), probably before she was old enough for a proper diagnosis. I don't think I will pursue more blood tests just to satisfy my curiousity--she matches the list of symptoms exactly. We live in Sandy, Utah, USA (near Salt Lake City, the capitol of Utah). We also have a 12 year old son named Sam who goes to a school named Waterford. I'm a stay-at-home mom, and husband John is an elderlaw attorney. Good luck in raising your family and thanks for sharing
Tracey Lumsden on Thursday, December 04, 2003 at 04:36:49
WS: No
Found: Search for WS sites - Which: msn
Comments: Great website, and beautiful music. Well done!
Tina Welborn on Tuesday, December 02, 2003 at 21:09:50
WS: Yes - Relation: Teacher
Found: Yahoo! WS club
Carmen Buik on Tuesday, December 02, 2003 at 10:00:59
WS: Yes - Relation: Grandparent
Found: Search for WS sites
Comments: Our Grandaughter has just been tested for Williams syndrom. She has been diagnosed with PKU a genetic problem that does not allow her to eat/ process protein. We are stunned that she might have this additional problem as well
Jennifer Rumler on Tuesday, December 02, 2003 at 03:19:12
WS: No
Found: Other - Which: yahoo search
Comments: I am currently making my own family website and am curious of others out there. Yahoo search brought up yours. Very nice site and great way to educate people on Williams Syndrome. I am a nursing student so that was very interesting for me.
celiacoleman on Saturday, November 29, 2003 at 14:36:47
WS: No
Found: Other - Which: google
Comments: I am doing a project for as training for special needs assistant and read an article in the Independent newspaper suppliment recently.I would be greatful for any additional information on the disorder I found it extremely interesting. Many Thanks.Celia Coleman
harry on Thursday, November 27, 2003 at 12:13:35
WS: No
Casey Dillen on Thursday, November 27, 2003 at 00:40:35
WS: Yes - Relation: Self
Found: Search for WS sites
Comments: Sent you an e-mail. Hope to hear from you soon!
roisin lacey on Saturday, November 22, 2003 at 01:08:32
WS: Yes - Relation: Other relative
Found: Told about it - Which: google
Comments: Fantastic informative site, it was only on reading it I realised how clueless I was about Williams syndrome.Regards to all the family and congrats on a fantastic website.
Rosa Ares on Thursday, November 06, 2003 at 04:30:59
WS: No
Found: Link from a WS site - Which: Google.com
Comments: I would love to have an email interview with you. I'm currently doing a simple research on Williams Syndrome and Language Development. And I would love to have a family perspective. I'm from the Diminican Republic doing my master in Child Development at Tufts University in Massachusetts
Kim O'Neil on Wednesday, November 05, 2003 at 20:41:15
WS: No
Found: Other - Which: Yahoo!
Comments: I was looking for ideas for a family website and found yours. I'm moved by your story and am glad that Patricia is doing well. God bless your family.
malki kenig o.t.r. on Monday, November 03, 2003 at 15:50:47
WS: Yes - Relation: OT/PT
Found: Link from a WS site
Albert J. Garry on Sunday, November 02, 2003 at 07:50:47
WS: Yes - Relation: Parent
Found: Search for a name - Which: google
Comments: My son is 17 months with WS. I'm trying to put myself in his place as he goes through typical life with his friends.
I just wish I knew what he was thinking and then I could answer his questions with his best interest in mind.
We are developing a website that will hopefully be in place top help him with any issue in his life, especially if I'm not here to look out for him.
How is your daughter fitting in with her friends? Do you know of any adult who is happily married with WS?
Thanks,
Albert
networkingforlife.org
Sharri on Saturday, November 01, 2003 at 22:36:49
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: yahoo
Comments: Hi,
New to web, first time surfing. I have a 13 year old daughter who has Williams Syndrome. She was diagonised at the age of three. Amazing how striking the similarities are reading about your daughter and what my daughter is like. I do not have an e-mail address and have little access to the internet.
Aoife Gavin on Wednesday, October 29, 2003 at 11:32:45
WS: Yes - Relation: Friend
Found: Other - Which: google
Comments: hi all!! delighted to see yer site, its great. hope all the Moylans are well. looking forward to seein all the w.s crowd sometime soon. take care xxx aoife
Morgan Krambeer on Monday, October 27, 2003 at 17:28:49
WS: No
Found: Other - Which: opera
Comments: I stumbled onto your site, after researching genetic disorders for my Psychiatric Assistant class. I just wanted to add you to my prayer list.
Colleen on Friday, October 24, 2003 at 21:12:09
WS: No
Found: Other
Comments: Your site is wonderful, as is your family. My 10 yr old son, Colby, has down syndrome. We feel he is just a special child of God. You can visit him at http://www.angels4real.com
Regina on Wednesday, October 22, 2003 at 22:15:48
WS: Yes - Relation: Other
Found: Link from a WS site
Comments: My son has williams syndrome. He has had surgery a couple of times. I would like to know more about his syndrome. He is 12 and he is starting to have heart problems again.
Donna Emery on Wednesday, October 22, 2003 at 17:42:09
WS: No
Found: Search for WS sites - Which: Google
Comments: Just learning about Williams. Thanks
Carla Collins on Monday, October 20, 2003 at 01:08:29
WS: No
Found: Link from a WS site - Which: yahoo
Comments: This seems all new to me and it must be tough to go through so much with your children I wish you and your family a whole lot of love
Charlene Whitcomb on Sunday, October 19, 2003 at 22:53:13
WS: Yes - Relation: Other
Found: Search for WS sites - Which: google
Comments: Thank you so much for sharing. A friend's granddaughter has WS. I hadn't heard of it before and wanted to learn more about it. I enjoyed very much your daughter's music and your pictures.
J. Toubman on Sunday, October 19, 2003 at 15:35:29
WS: No
Found: Other - Which: television
Sue Niegel on Saturday, October 18, 2003 at 20:33:30
WS: Yes - Relation: Friend
Found: Link from a WS site - Which: msn
Comments: A friend of mine just found out their granddaughter has Williams syndrome. She is 8 months old. I have a 31 year old daughter with Down syndrome and yet I have never heard of williams syndrome. I thought I'd educate myself.
Jaycee on Saturday, October 18, 2003 at 02:57:25
WS: No
Found: Other - Which: google
Comments: was just looking for website ideas for my family and ran into yours. take care
Natalie Emery on Friday, October 17, 2003 at 16:08:47
WS: Yes - Relation: Friend
Found: Yahoo! WS club
rachael sharpe on Friday, October 17, 2003 at 10:33:46
WS: Yes - Relation: Other relative
Found: Link from another site - Which: google
Comments: my sisters second child is suspected williams syndrom(we are waiting for the blood test results but a lot of what we have read seems to tie in) he is five months old so we are lucky to have an early diagnosis given by a paediatric cardiologist (they live in australia) that my sister was referred to following her continual insistence that something is not right with him , feeding problems,poor weight gain,and what appeared to be partial facial paralysis as well as problems immediately at birth (blood sugar levels and need for oxygen). my partner and i both work with special needs adults and neither of us have come across this condition before so we are simply searching for all the information we can get. my sister is 90% sure that the results will show he has williams syndrome. thanks for the website it is very reassuring to be able to access so much information from all around the world.
heidi on Tuesday, October 14, 2003 at 23:10:14
WS: No
Found: Search for WS sites - Which: Google
Comments: I found this site through links from other WS sites. I am a student in college taking special needs teacher assistant and we are doing a group project on Williams Syndrome. I was looking for a couple stories of families with a child having WS as a part of our presentation.
AISLING SMYTH on Tuesday, October 14, 2003 at 21:33:04
WS: Yes - Relation: Friend
Found: Search for WS sites - Which: askjeeves
Comments: hey!just to say a big hello to all the moylans!it was brilliant to have met you all during the summer.Hope trish is keeping up the music!See you all next summer. all the best. ashxoxo
Douglas on Sunday, October 12, 2003 at 20:56:39
WS: No
Patricia Robertson on Saturday, October 11, 2003 at 21:17:44
WS: No
Found: Other - Which: Yahoo
Comments: I am decended from Julia Regan and David Moylan. I was searching for Moylans and found your site.
Cheryl on Thursday, October 09, 2003 at 13:05:38
WS: Yes - Relation: Other relative
Found: Search for WS sites - Which: Google
Comments: I have just found out over a week ago that my 33 months old nephew has williams syndrome, I hope that your website will help me to understand it a little better, I think it will
karen smith on Tuesday, October 07, 2003 at 17:20:45
WS: Yes - Relation: Sibling
Found: Link from a WS site - Which: we asked jeeves
Comments: Hi i a six month old daughter and we were just told yesterday that she has w/s we are so lost we had a happy healthy baby at 12am and by 4pm we had a sick baby .I need to talk to someone who knows more about this people keep telling me different things .the health vistor said she was fine and that she coming on great but was just a slow eater,my docot said i should have lost her by now,the doctors at the hosipital say that they can only tell because they know what they are looking for and she has small tubes leading to her heart and she has ahigh calcium level.I am so lost i keep looking at her and wondering what happend to my baby .Please helpme the doctor say they can not tell me anymore until she is 5 yrs old i can not wait that long any information we be great.
yours faithfully karen.
katherine on Tuesday, October 07, 2003 at 16:45:49
WS: No - Relation: Self
Found: Yahoo! WS club
Comments: I'm coming form The Netherlands, Amsterdam. this is a very interest home page. with steppingstones I have to do something with the internet, I have to look for things about family and friends. but I have to go now!
bye bye
katherine who's learn English
Carmen on Monday, October 06, 2003 at 17:51:32
WS: Yes - Relation: Sibling
Found: Search for WS sites - Which: google
rona mcneely on Saturday, October 04, 2003 at 03:24:32
WS: Yes - Relation: Friend
Found: Other - Which: aol
Cheryl on Wednesday, October 01, 2003 at 12:48:43
WS: Yes - Relation: Doctor/Medical Professional
Found: Search for WS sites
Which: google.ie
Linda Fullingim on Sunday, September 28, 2003 at 16:18:33
WS: Yes - Relation: Parent
Found: Search for WS sites
sandy borgstrom on Sunday, September 28, 2003 at 12:18:44
WS: Yes
Found: Search for WS sites
Comments: my son is 8 years old and it has taken this long to find out he has WS. I found out about a month ago. I always knew something was wrong but could not find a doctor to diagnose him until now. He is the sweetest, most caring child you could ever meet. Everyone falls in love with him and he always thinks of others before himself. I watch him everyday bring joy to people. Yesterday we were at a store and a lady was arguing with her teenager in the check out line and Sean, my son, tells them to please dont fight with one another because it hurts my heart. The lady just looked at him and tears came to her eyes and she realized that Sean was right. Every day it is like this with him. He is the apple of my eye. I guess that I am just kind of lost right now. We are in the process of all the doctor visits right now to make sure everything is okay. If you know of a support group or anything that would help, I would appreciate it. Thanks for the wonderful web site, I enjoyed it! very much. If you have any literature, please send it to
Sandy Borgstrom
7103 CR 865
Alvin, Texas 77511

Thank you for your time, it really means alot.
natalie moylan on Friday, September 26, 2003 at 21:13:56
WS: No
Comments: im a moylan too
sprinter on Thursday, September 25, 2003 at 15:40:52
WS: No - Found: Other
Comments: Hello, i like your website very much!
Meredith on Friday, September 19, 2003 at 18:56:44
WS: Yes - Relation: Friend
Found: Link from a WS site - Which: mywebsearch
Comments: At college, a guy came up to me, and was too friendly. I thought I was being sexually harassed, but then he confided in me that he had Williams Syndrome. Then, I felt okay.
Dawn Moylan on Friday, September 19, 2003 at 15:04:16
WS: No
Found: Other
Comments: Hello, my name is Dawn Moylan, I'm 25years of age and I live in Toronto, Ontario Canada. I'm very interested in learning more about the Moylan history. Many warm greetings to all Moylan's from sunny Canada!!!
john clair on Friday, September 19, 2003 at 03:03:21
WS: No
Found: Link from a WS site - Which: google
Comments: I am a student at theWest Virginia School of Osteopathic medicine and we are in the middle of a cardiovascular block and Williams syndrome came up with discussion of CV anomalities. The text refers to "stellate pattern of the iris" and I have been trying to find photos of this. Thank you. John clair
Rafael Achecar on Thursday, September 18, 2003 at 03:08:30
WS: No
Found: Search for WS sites
Comments: Dear Mr.And Mrs Moylan :
I learned about Williams Syndrome today, in a casual conversation with the mother of the Dean of Berkrshirehills Music Academy. What I heard from her was amazing, the talent and ability of theese children to accomplish their tasks. I decided to check the internet and saw yor web site. What you are doing for Patricia tells me the kind of individual and parents you both are. Everybody should like you. We will be in a better world.
I am a physician,an anesthesiology,with a interest in literature and writing, preparing my first collection of short stories. I was born and raised in The Dominican Republic, I live in Honesdale Pennsylvania and have 3 "adults" children, the younger is 20, studying photography, My oldest is married, she is a lawyer and works at New York University, the middle one lives in N.Y. as well, just got engaged to a medical resident and they will get married next year. He works for AIG insurance. My regards to Patricia and John. Tonight I have learned that your extended hand have touched me and my soul feels healthier and more human. Thank you for showing me your family.
Regards,
Rafael
George Collins on Wednesday, September 17, 2003 at 20:17:48
WS: No
Found: Other - Which: google.co.uk
Comments: my dad has asked me to make a family website www.geocities.com/collins_westacre and I am just looking for ideas.
Francesca Griffin on Tuesday, September 16, 2003 at 21:29:07
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: Williams Syndrome search
Comments: I have a 5 1/2 year old son with Williams Syndrome. He was misdiagnosed many times between the ages of birth to ten months. The doctors said he was blind, deaf, autistic, and having Downs Syndrome. I kept saying "No, your wrong." The doctors thought that I was in denial. Then one day a doctor my son had never been to before, opened a textbook and said, "I think this is what he has, Williams Syndrome." I began researching it and discovered that is exactly what he has--every physical and health symptom as well as the mental ones.
I have had no support for my son from doctors or caregivers. Ethan has had physical therapists, occupational therapists, speech therapists, all of whom work with him for a few months and then drop him and say that he is completely retarted and will never be able to to anything. In fact his physical therapist said that he would never be able to walk, and sincece there was nothing that she could do for him,she was dropping him. Two weeks later, he started walking--though he was 2 1/2 before he walked at all.
I am trying to homeschool Ethan because he has been rejected from special ed programs--since they don't understand the syndrome they don't want to deal with it--and he has been rejected from mainstream public schools because of his inability to keep up with his age group. If anyone has any advice about how I can go about teaching Ethan to read and write, I'd appreciate it. Thank you for your time. Ethan's mom Francesca.
Anna on Monday, September 15, 2003 at 20:27:45
WS: Yes
Deborah Moylan on Sunday, September 14, 2003 at 09:41:18
WS: No
Found: Search for a name - Which: Google
Comments: Just trying to track down some relatives. Not many in New Zealand. All we know is that we originated from Ireland.
Carma Lee Lewallen on Sunday, September 14, 2003 at 02:32:39
WS: Yes - Relation: Other relative
Found: Search for WS sites - Which: Google
Comments: My Nephew is 21 months & is the process of being evaluated.I live in the US while my brother & his family live in the UK. He was intially evaluated w/ Global Developemental Delay, they just recently went to a private practice for futher evaluation. I gather WS was mentioned,as this is a trying time for my brother, his wife(currently 7 months pregnant, & tired) I decided to do abet of my own research. My Nephew's name is Spencer & georgous, as is your daughter. I found your sight informative & reassuring.
Kim on Thursday, September 11, 2003 at 22:45:34
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: google
Jodie Wullkotte on Thursday, September 11, 2003 at 04:06:15
WS: No - Relation: Parent
Found: Link from a WS site
Comments: My daughter is being tested at this time for WS, this came about due to her having high calcium for the past 16 months.
Troy Barry on Tuesday, September 09, 2003 at 16:23:30
WS: No
Found: Search for WS sites - Which: Yahoo
Comments: You have a beautiful family. I was doing some research on WS and came across your web site. My son is special needs.
All the best to all of you.
TB
Melissa Crespin on Tuesday, September 09, 2003 at 06:03:39
WS: Yes - Relation: Sibling
Found: Search for WS sites - Which: yahoo
Comments: Hi, my name is Melissa Crespin I'm 19 years old. i have a daughter with Williams syndrome she is now 18 months old i would like to learn more about your experiences with your daughter. Please feel free to e-mail me, thank you
leone berry on Monday, September 08, 2003 at 11:57:40
WS: Yes - Relation: Parent
Found: Search for a name
Comments: hi, my name is leone berry . i have a daughter with ws and she is 14yrs old..i live in rockhampton, queensland, austraila... i can't remember if i have gone on your site or not but i'm glad i did.. email me if you would like to have a chat, and i will reply to you.....it would be nice just to hear from other mums and dads who have a child like lizzy..... thank you , hope to hear from you soon... leone berry. austraila......
Jami on Saturday, September 06, 2003 at 19:13:23
WS: No
irene clarke on Friday, September 05, 2003 at 05:26:02
WS: Yes - Relation: Doctor/Medical Professional
Found: Search for a name - Which: intranet
Comments: An extremely good insight into this condition which enabled me to nurse patient appropriately - thank you
VIELKA BROWN on Wednesday, September 03, 2003 at 23:28:01
WS: Yes - Relation: Other
Found: Other
Lewallen on Wednesday, September 03, 2003 at 16:31:53
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: lili claire
Lacey Tuyls on Friday, August 29, 2003 at 21:29:33
WS: Yes - Relation: Other
Found: Yahoo! WS club
Comments: My niece is 2 1/2 and she has WS. My mom has recently found out that Agent Orange used in Vietnam is a cause of WS. I want to find out how many people with WS have any direct link to Agent Orange, through a parent or grand parent. Since my father was exposed to it, could he have passed that on to my sister, who then had my niece? Please let me know what you think and help me in my study. Thanks, Lacey
Malgorzata Kaszewska on Tuesday, August 26, 2003 at 21:16:40
WS: Yes - Relation: Parent Found: Search for WS sites - Which: all Comments: Hi
I have a son who is almost 5. Since the day he was born we had many problems with him low weight, did not eat, PDA heart problems, cleft pallet, feeding problems etc.
Now finally we went to the hospital for more tests because me and my husband felt that there must be more to this then just slow in development. My son has abnormal lungs, when he eats or drinks all the food or liquid goes to his lungs, we have to thicken up all his liquids. We went through the genetic clinic and they think he has a Williams syndrom. When I read through some of the web sites I can see many things that relate to him. We will find out more in about 3 weeks.
Please let me know if you have time that you did receive this e-mail. Because I really need to speak to someone.
I still don't understand this syndrom.
Mal
Ashley on Tuesday, August 26, 2003 at 15:14:06
WS: Yes - Relation: Teacher
Aoife O'Connor on Saturday, August 23, 2003 at 19:54:33
WS: Yes - Relation: Friend
Found: Told about it - Which: Google
Comments: Just checking out your website! How did you do it? Im trying to do one! Hi Patricia!!
margaret glenn on Wednesday, August 06, 2003 at 06:00:15
WS: Yes - Relation: Friend
Found: Search for WS sites - Which: msn
Comments: I have a friend with a 4 yr old son with WS.They are wonderful children.
Ferg D'Arcy on Wednesday, August 06, 2003 at 02:19:34
WS: Yes - Relation: Teacher
Found: Link from a WS site - Which: google
Comments: How are all the moylans... Hope trish is practicin' that guitar cos next year we're gonna rock the place....All the best....Ur mate >>>DARC (fergal D'Arcy, Spiky hair guitar teacher extraordin..aire)
Hazel Hartigan on Tuesday, August 05, 2003 at 22:11:09
WS: No
Found: Other
Comments: Your site is wonderful I came upon it by accident, My daughter Chloe is 16 months and was diagnoised at 12 months with Cerebal palsy. I have yet to find a site as full of information about her condition as yours . Well done I hope you are proud of youselves
Helen on Tuesday, August 05, 2003 at 16:32:30
WS: Yes - Relation: Parent
Found: Link from a WS site
Comments: My daughter's name is Marie-Eve,Canadian 13 yrs old with Williams Syndrome; 2 heart murmurs, nuclear cataract and another eye problem in both eyes, a skin condition on her face (related to Noonan Syndrome)and beauty marks all over her face and body. She will be going to a special class in the fall with other students with a 3rd grade level. She has difficulty in Math and French. She loves to swim, listen to sing and listen to music. She doesn't have many friends. She feels rejected by kids her own age. Loves animals especially dogs!
Kristy on Thursday, July 31, 2003 at 20:54:42
WS: Yes - Relation: Self
Found: Link from a WS site - Which: google
Comments: My name is Kristy I have Williams. I would like to talk to other people who have williams too THanks Kristy How old is your son now.?I am 14 I live in Ca Usa
Roger Britton on Monday, July 28, 2003 at 08:55:28
WS: No - Relation: Parent
Found: Search for WS sites - Which: ask.co.uk
Comments: Have recently returned to Ireland after living abroad for many years, now living in Greystones. My daughter Charlotte, who is 12, has Williams. Appears to be of very similar ability to your daughter. Will make contact with the WS group in Ireland in the near future.
Jean Hill on Wednesday, July 23, 2003 at 02:04:06
WS: Yes - Relation: Other relative
Found: Link from a WS site
Comments: I have a wonderful 19 year old nephew with WS. He just graduated High School this past June. I just wanted to gather information to better understand the syndrome. We have a large extended family and much love and support. God certainly knew what he was doing when he chose Grant's parents. They are educated and loving. Grant is very bright and has a warm personality.
sharon amato on Thursday, July 17, 2003 at 04:51:56
WS: Yes - Relation: Parent
Found: Other - Which: google
Comments: My daughter, Melana, is 9 years old (diagnosed at age 4) and has Williams Syndrome. Most of the time, I believe that she is the best thing that ever happened to me. Her two younger brothers have developed their whole sense of social skills based on her approach. I sometimes wonder how different they would be if they didn't have Melana as their guide. She has been a huge positive impact on our lives. Thanks, Sharon
Sheryn Brown on Sunday, July 13, 2003 at 13:08:36
WS: Yes - Relation: Friend
Terry Collins on Friday, July 11, 2003 at 22:40:17
WS: No
Found: Other
Comments: I found you just by doing a Google Search on "Family Website" My dad works on a family site for us (bennettcollins.com) and I love to look at other families. I especially enjoy finding families in Ireland. We Collins' have been in the U.S. for many generations, but we are all still very proud of our roots there. I enjoyed looking at the pictures. Some day, I want to come and take some pictures of my own! Thanks for sharing your life! - TLC
chuck moylan on Friday, July 04, 2003 at 09:01:37
WS: No
Found: Search for a name
Which: google
Jackie Cronin on Wednesday, July 02, 2003 at 22:32:11
WS: Yes - Relation: Friend
Found: Link from a WS site - Which: oceanfree
Comments: I have applied for a position as a special needs assistant in our local school in Enniskerry. Hannah the little girl who will require an assistant has Williams Syndrome. I am interested to know about the condition.
Mike Ireland on Sunday, June 29, 2003 at 20:14:50
WS: No
Which: Google
Comments: Hi: I was looking for Family Websites and I came across yours. I have heard of Williams Syndrome but I did not know much about it and how many cases where out there! I have a Winnipeg, Manitoba (Canada) website with over 8,000 hits per month and growing. I will add The link to Williams Syndrome Association of Ireland on my main page site under Family & Medical Links. I hope this will help to get move people involved and more aware of this. If you would like to put your family website in our Family Website Tree on the main site page Please feel free to Email me. thanks and Good Luck God Bless. http://www.winnipegathome.com
paola on Friday, June 27, 2003 at 03:11:43
WS: Yes - Relation: Other relative
Found: From the WS listserv
Comments: what a joy to see your lovely girl we recently spent 2 weeks with our niece seirarn who has ws & will soon be 29yrs old she too enjoys music & played the bongo drums for us in accompaniment with her dad. great site
catherine cambier on Monday, June 23, 2003 at 18:18:48
WS: Yes - Relation: Parent
Found: Search for WS sites
Comments: our daughter Madeline is seven. she was diagnosed at six months. in pre-school she won the award for "most cheerful and friendly." and that is madeline in a nutshell. she has a five year old sister named Abigail, and a four year old brother named Jacob.
Victoria Lundrigan on Friday, June 20, 2003 at 22:15:23
WS: Yes - Relation: Other relative
Found: Link from a WS site - Which: Williams-BeurenSyndrome.com
Comments: I am trying to find support for my sister who has a son with Williams Syndrome.
Gino Marnoni on Monday, June 16, 2003 at 15:09:23
WS: No
Found: Other - Which: google
Comments: I was searching family websites to see what others are doing, and what they're posting. Strange, but when visiting your site it feels like I'm making a personal call on your family. Our family site will be a little messy until I rewrite it. It's mostly lots of photos, but we plan to add lots more. We're from California by way of Pennsylvania and Australia. If you have a moment come visit us at http://www.marnoni.com
Helena Kubik on Sunday, June 15, 2003 at 07:56:32
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: internet explorer
Comments: I have been to your site several times. I always find something new to read and learn about my own daughter. Thank you for the work you have put into this site. I'm sure that it has helped many people just like it has helped me.
Thank you so much
God Bless You
Helena Kubik
Jessica Peterson on Sunday, June 15, 2003 at 04:18:57
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: Ryan's family website
leanne on Wednesday, June 11, 2003 at 22:52:01
WS: Yes - Relation: Other relative
Found: Search for WS sites - Which: www.williamssyndrome.org
Comments: i recently found out my cousin who i havent seen in thirteen years has ws. and i wanted to know what the condition is. reading some of the signs about ws in early years was like describing him.
Tami on Monday, June 09, 2003 at 16:20:41
WS: No
Found: Other - Which: Yahoo
Comments: I am just looking at family websites as my husband and I are going to build one and are trying to gather ideas from other family sites. I like the simplicity of yours!
samantha on Thursday, June 05, 2003 at 11:05:57
WS: Yes - Relation: Other
Found: Other - Which: GOOGLE
Comments: hello my name is samantha i was digsnosed with williams syndrom when i was little and i had it ever since sometimes i get angry with it sometimes i cry i keeped this to my self for a long time i want to tell my friends but i just cant because im afraid they would hate me im turning 15 in 17 weeks if u like to email me be free to love samantha from sydney
martin mccarthy on Wednesday, June 04, 2003 at 23:33:30
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: google
Jaimie Tinling on Wednesday, June 04, 2003 at 20:24:27
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: internet
Comments: it is ok for you to share my email address
Jaimie Tinling on Wednesday, June 04, 2003 at 20:06:12
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: ?
Comments: Hi, My name is Jaimie Tinling. I Have A healthy daughter named Alison who was born January 30th, 2002. My husband Gregg and I decided to have our children close together. We were expecting our second child May 8, 2003. Our son Eric was born April 4th,2003 by emergency ceasarian. His embilical cord was tight around his neck. He was born weighing 3 pounds 11 ounces and 17 in long. The doctors told me he should have been 6 to 7 pounds for being 35 weeks gestation. He came out breathing on his own and his apgars were 8 and 9. He spent 2 1/2 weeks in the intermediate care unit at Woman's hospital here in Winnipeg,Manitoba,Canada. He came home weighing 3p 14o. He stayed at home for 1 week and I took him back to the hospital as he had strange looking stools. he spent 6 weeks in the hospital getting several different tests done. Finally on May 30th he was diagnosed with WS. He is now 2 months old. I don't know how you went 5 years not knowing. Eric is qiute colicy, His ventrical leaving the heart is narrow but the doctors say it is ok to have this. He is now only 6 pounds as of today. he is on lactofree formula and it is mixed stronger for extra calories. As for facial features he has the puffy eyes and cheeks and a button nose. Noise doesn't bother him but he may be used to it from the hospital. I have now had him home for 5 days And I am finding it very hard to look after two babies. Thank you for sharing your story it was very touching. Sincerly Jaimie Tinling Winnipeg, Manitoba, Canada.
loisgayle on Tuesday, June 03, 2003 at 16:04:47
WS: No
Found: Search for WS sites
Shirley Horn on Friday, May 30, 2003 at 05:19:17
WS: Yes - Relation: Grandparent
Found: Search for WS sites - Which: explorer
Comments: I just found out tonight that a new little grandson has been diagnosed with Williams Syndrome. I am trying to learn what I can about this condition. You have a wonderful educational site and you sound like really special people. Thank you for sharing. Shirley
Diana Archer on Wednesday, May 28, 2003 at 11:41:48
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: google
Comments: Our daughter Elizabeth is now 42 years old and just diagnosed with WS about 3 years ago. I too blamed myself for her condition so it was a relief in a way to be able to get some information about her condition. You have done so well with your girl. Elizabeth is a joy but although loving music and speaking extremely well does not have the capabilities of reading etc. She hates some noises and lives now in a L'Arche community here in Canberra, Australia
Hope all continues well for your family and especially Patricia.
Diana Archer
Dawn Barker on Monday, May 26, 2003 at 10:35:30
WS: Yes - Relation: Other relative
Found: Link from a WS site - Which: google
Mara L. Baber on Wednesday, May 21, 2003 at 02:28:42
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: Internet Explorer
Comments: What sa lovely website you have setup. And such a beautiful read about your daughter. The pictures of where you live are just gorgeous as are your children. I have a 12 year old son with WS who was just diagnosed in September of 2002. He has always recieved Special Education Services at school which has gone well for the most part. Thanks so much for the glimpse into your lives. As parents we certainly didn't ask for special needs children but I thank God for choosing me to be my son's Mom. Blessings, Mara
Róisín M Hegarty on Wednesday, May 14, 2003 at 15:22:10
WS: Yes - Relation: Other
Found: Link from another site
Beth Webster on Sunday, May 11, 2003 at 20:42:27
WS: Yes - Relation: Other
Found: Link from another site - Which: ask jeeves
Comments: Thanks for the site, i am a support worker working with a young adult with Williams Syndrome and iam interested in finding out additional information about the condition
ROCIO PEREZ MIES on Thursday, May 08, 2003 at 12:50:35
WS: Yes - Relation: Parent
Found: Search for WS sites
Comments: I DON´T SPEAK ENGLISH. I am fron Spain. My daugther Laura has SW. She is three years old. I´m interested about all information. Thanks
Barbara on Thursday, May 08, 2003 at 04:19:20
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: aol
Comments: I have a son 7 with WS was just checking out some stuff for the dentist. saw your site just thought would check it out.nice to meet you guys.
E Holdsworth on Tuesday, May 06, 2003 at 20:34:35
WS: Yes - Relation: Friend
Found: Search for WS sites - Which: google.com
Comments: Thank you very much, Info is scarce in the U.K.
Moya Palmer on Tuesday, May 06, 2003 at 00:56:59
WS: No
Found: Search for WS sites - Which: google
Tammy Stebakken on Thursday, May 01, 2003 at 20:44:32
WS: Yes - Relation: Other relative
Found: Search for WS sites - Which: msm
Comments: I was just looking up something on Williams Syndrome which my neice has and she is 16 years old and my brother has never told the family much about it. Your daughter looks just like my niece.
Cilla Mahony on Monday, April 28, 2003 at 13:31:44
WS: Yes - Relation: Other relative
Found: Told about it
Comments: Our daughter Claire is 10yrs old and diagnosed with Williams synd.,at 10 months old.
Salim@Suaad on Friday, April 25, 2003 at 21:26:33
WS: Yes - Relation: Parent
Found: Link from a WS site
Comments: We have nine years old girl with WS and would like to keep in touch to exchange knowledge on the matter. I found your website to be very good and useful. If you don't mind us communicating with you please respond to this and drop us an E-note. Many thanks.....
Jennifer on Wednesday, April 23, 2003 at 18:16:18
WS: Yes - Relation: Doctor/Medical Professional
Found: Search for WS sites - Which: google search
Comments: I am a first year sppech therapy student in Scotland and just wanted to say your site has been a wonderful help for the parents of my WS patient. Thank you so much Jennifer xx
Renay Wattenbarger on Monday, April 21, 2003 at 19:17:58
WS: Yes - Relation: Teacher
Found: Search for WS sites - Which: google
Comments: I have an eight year old student with Williams. I am just looking for some information that will help me better serve her needs. Any leads for educational sites would be great.
JENNIFER KELLY on Monday, April 21, 2003 at 00:07:42
WS: No
Found: Other - Which: GOOGLE
Miriam on Saturday, April 19, 2003 at 22:34:29
WS: Yes - Relation: Grandparent
Found: Link from a WS site - Which: Google
Christina on Thursday, April 17, 2003 at 20:48:01
WS: No
Found: Search for WS sites - Which: msn.com
Inga Hughes on Thursday, April 17, 2003 at 06:13:46
WS: No
Found: Search for WS sites - Which: google.com
Comments: I am a student at Chapman University in Moreno Valley, California. I am currently in a Master's program for a teaching credential. I am doing a research paper on Williams Syndrome. Thank you for allowing me to view you very lovely site.
Tina Anderson on Tuesday, April 15, 2003 at 16:57:21
WS: Yes - Relation: Friend
Found: Search for WS sites - Which: google
Comments: Rick Ashley is in my Sunday School class and his brother is own various athletic teams with my son. He is the most precious human being I have ever come in contact with. Our entire community knows and loves Little Rick. He is a local celebrity. He is so loving and open. I am truly grateful to know him and be a part of his life.
tass on Monday, April 14, 2003 at 02:34:16
WS: No
Found: Search for WS sites
Jackie Cameron on Thursday, April 10, 2003 at 13:51:22
WS: Yes - Relation: Parent
Found: Link from a WS site
Comments: Thank you for sharing Patricia's moments with us. Our son has recently been diagnosed with WS and your website was very positive. Thank you.
Flo on Thursday, April 10, 2003 at 00:47:27
WS: Yes - Relation: Friend
Found: Link from a WS site - Which: yahoo
Comments: Hello. I am a Middle School Teacher in Massachusetts. I am looking for information about Williams Syndrome as I will have a child with WS assigned to me next September. Any hints??
DEBBIE on Tuesday, April 08, 2003 at 21:41:38
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: GOOGLE
Comments: THANK U .... BROUGHT ME HOPE
Paul Rogen on Friday, April 04, 2003 at 21:13:08
WS: Yes - Relation: Teacher
Found: Link from a WS site
Comments: Interesing on early development. Especailly interested in biking and skiing.
shelley drinkwalter on Tuesday, April 01, 2003 at 16:24:23
WS: Yes - Relation: Sibling
Found: Yahoo! WS club
LANITA TRUSKO on Friday, March 28, 2003 at 05:44:38
WS: Yes - Relation: Other relative
Found: Search for WS sites - Which: AOL
Comments: i HAVE A COUSIN WITH THIS SYNDROME. yOUR PHOTO GALLERY IS BEAUTIFUL. I HOPE YOUR FAMILY IS WELL. GOD BE WITH YOU.
Kim on Thursday, March 27, 2003 at 03:02:06
WS: Yes - Relation: Parent
Found: Search for WS sites
Rosalie A Krause on Thursday, March 27, 2003 at 00:19:36
WS: Yes - Relation: Grandparent
Found: Link from a WS site - Which: google
Comments: I want to know everything about Williams because of our granddaughter. She hasn't been official diaginost with Williams but all that I can read it points to her.
Qunhui Yang on Wednesday, March 26, 2003 at 01:58:50
WS: No
Found: Search for a name - Which: Google
EMBeb1221@aol.com on Tuesday, March 25, 2003 at 21:20:34
WS: Yes - Relation: Parent
Found: Search for WS sites
michael j. moylan on Friday, March 21, 2003 at 17:08:22
WS: No
Found: Search for a name
Comments: I live in Stanfield, North Carolina (origainally from St. Paul, Minnesota. Father's name was Thomas. My grandparents were both born In Ireland (O'Conner/Moylan)
Andy Moylan on Friday, March 21, 2003 at 12:33:35
WS: No
Found: Other
katie elliott on Monday, March 17, 2003 at 13:48:51
WS: No
Found: Link from a WS site - Which: google
Comments: I am currently finding research on williams syndrome for an assignment for my degree. I found reading about patricia very helpful as the information came from first hand experience rather than general infomation sites. It has helped me to understand williams syndrome in greater depth than i previously did. Thankyou and good luck for the future.
Elizabeth on Wednesday, March 05, 2003 at 02:18:02
WS: No
Found: Told about it - Which: www.familyvillage.wisc.edu
Comments: I came across your site during a university assignment on children with special needs. I appreciate the sharing of your stories. It provides insite for me as I head out into the education field. Thank you!
Danny Canning on Saturday, March 01, 2003 at 19:28:46
WS: No
Found: Yahoo! WS club
Comments: very Good website i think it is an amazing thing to set up a site like this!
anna miklich on Friday, February 28, 2003 at 00:24:52
WS: Yes - Relation: Parent
Found: Search for WS sites - Which: yahoo
Comments: well, it was nice to hear stories of another family dealing with williams syndrome, for a while there i thought i was the only one, my daughter is only 2 1/2 but she is doing well but she has been through alot. i hope the same for your family. thanks for the info and to know im not the only one.
KAREN HARDY on Friday, February 21, 2003 at 18:38:42
WS: Yes - Relation: Parent
Found: Link from a WS site - Which: GOOGLE
Comments: BETH HAS JUST HAD A POSITIVE TEST RESULT LAST WEEK. BETH IS TWO YEARS OLD. I WOULD JUST LIKE TO KNOW HOW AND WHAT YOU DID WITH PATRICIA AT THIS STAGE AS I BELIEVE SHE IS DOING VERY WELL.
B Brandon on Sunday, February 16, 2003 at 22:39:48
WS: No
Found: Other - Which: MSN Search
Comments: Hi! What an interesting site! I just happened along and stopped to take a look. I'm a special education student in the US and had never heard of Williams Syndrome before. I'm going to make a point to look up a bit more about it. Thanks for such a wonderful bit of new info to just luck up on!! I hope you are all well. :)
Thelma Sterling on Sunday, February 16, 2003 at 13:12:30
WS: No
Found: Search for WS sites
Comments: Thank you for your help in my research. May God continue to keep you and your family.
tracy on Thursday, February 13, 2003 at 16:34:24
WS: No
Found: Link from a WS site
Carey Pearce on Wednesday, February 12, 2003 at 23:38:35
WS: Yes - Relation: Parent
Found: Link from a WS site
jean on Sunday, February 09, 2003 at 16:26:19
WS: No
Found: Link from another site - Which: greengrass beverley
Comments: must be very comforting to others to talk things through,You live in beautifull country.and have lovely children' so much is happening in the Genetic field one hopes Williams syndrom will be preventable in the future . so pleased you are able to discuss with others.. May God be with you all
nikki on Sunday, February 09, 2003 at 16:18:42
WS: Yes - Relation: Parent
Found: Link from a WS site
Comments: hello, i hav got two kids,declan who is nearly two and has ws,and ellie who is 8months,your site is fantastic, keep up the good work.
Liz Moylan on Friday, February 07, 2003 at 12:43:37
WS: No
Found: Search for a name - Which: Google
Ali Kotun on Thursday, February 06, 2003 at 16:23:31
WS: No
Comments: Im looking for information about williams syndrome. For a project in school. Pictures would be helpful.
kelly on Monday, February 03, 2003 at 06:40:22
WS: Yes - Relation: Friend
Found: From the WS listserv
Comments: can you tell me does she have heart problems.my friend is 11 years old and has had 3 open heart surgerys,she has had coils put in her heart to open her aterys,they said her arterys and veins don't grow.now she is in the hospital with a infection and they don't know what it is from,so any help would be appreciated....thank-you kelly
jackie parra on Tuesday, January 28, 2003 12:33 AM
HELLO
MY NAME IS JACKIE PARRA, MY GRANDDAUGHTER HAS WILLIAMS. I'M LOOKING FOR OTHER FAMILIES TO KEEP IN TOUCH WITH. THANK YOU FOR YOUR TIME :} JACKIE PARRA
Lester J. Hartrick on Monday, January 27, 2003 10:46 PM
A delightful family history with an in depth insight into your daughter's disease. It is the first time that I have ever heard of it.
I've also been to hook head. As I have concentrated my researches in County Wexford. Your pictures are superb.
Many years ago, there were two little old ladies living in a bungalow next door to me in Chicago. Their name was Moylan.
Lester J. Hartrick
LaDonna Sauer on Friday, January 24, 2003 3:38 AM
Hi my name is LaDonna Sauer. Ihave ason withwilliams syndrome.he is 24yrsold. I would really like to chat to with you sometime. My e-mail is ldjs@pld.com hope to hear from you. thanks ladonna
Anne Ryan on Thursday, January 23, 2003 12:58 AM
Hello
My maiden name is Moylan and we live in Australia. My brother is putting together a family tree and I was searching for it on the internet and came across you. Our family is from County Clare about 150 years ago.
G'Day from the Land Down Under
Anne Ryan (nee Moylan)
EMNET on Thursday, January 09, 2003 11:26 PM
HI MY NAME IS EMNET AND I HAVE WILLIAMS SYDROME FORE A LONG TIME AND I HAVE BEN LOOKING FORE A FRIEND WHO HAS THE SAME THING

Moylan Family Website